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KMID : 1161220200630040141
Clinical and Experimental Pediatrics
2020 Volume.63 No. 4 p.141 ~ p.145
Korean parents¡¯ perceptions of the challenges and needs on school re-entry during or after childhood and adolescent cancer: a multi-institutional survey by Korean Society of Pediatric Hematology and Oncology
Lee Jun-Ah

Lee Jae-Min
Park Hyeon-Jin
Park Mee-Rim
Park Byung-Kiu
Ju Hee-Young
Kim Ji-Yoon
Park Sang-Kyu
Lee Young-Ho
Shim Ye-Jee
Kim Heung-Sik
Park Kyung-Duk
Lim Yeon-Jung
Chueh Hee-Won
Park Ji-Kyoung
Kim Soon-Ki
Choi Hyoung-Soo
Ahn Hyo-Seop
Hah Jeong-Ok
Kang Hyoung-Jin
Shin Hee-Young
Lee Mee-Jeong
Abstract
Background: For children and adolescents with cancer, going back to school is a key milestone in returning to ¡°normal life.¡±

Purpose: To identify the support vital for a successful transition, we evaluated the parents¡¯ needs and the challenges they face when their children return to school.

Methods: This multi-institutional study was conducted by the Korean Society of Pediatric Hematology and Oncology. The written survey comprised 24 questions and was completed by 210 parents without an interviewer.

Results: Most parents (165 of 206) reported that their children experienced difficulties with physical status (n=60), peer relationships (n=30), academic performance (n=27), emotional/behavioral issues (n=11), and relationships with teachers (n=4) on reentering school. Parents wanted to be kept informed about and remain involved in their children¡¯s school lives and reported good parent-teacher communication (88 of 209, 42.1%). Parents reported that 83.1% and 44.9% of teachers and peers, respectively, displayed an adequate understanding of their children¡¯s condition. Most parents (197 of 208) answered that a special program is necessary to facilitate return to school after cancer therapy that offers emotional support (n=85), facilitates social adaptation (n=61), and provides tutoring to accelerate catch up (n=56), and continued health care by hospital outreach and school personnel (n=50).

Conclusion: In addition to scholastic aptitude-oriented programs, emotional and psychosocial support is necessary for a successful return to school. Pediatric oncologists should actively improve oncology practices to better integrate individualized school plans and educate peers and teachers to improve health literacy to aid them in understanding the needs of children with cancer.
KEYWORD
School re-entry, Childhood cancer, Parents
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